Posts Tagged ‘breast cancer survivors’

It Seems Like Forever

It seems like forever since my last post about winning a nice award for Abidance: A Memoir of Love and Inevitability. It was such an exciting time for Les and me.

And it has been eighteen months. It was August of 2019. We have all been through a lot since then. We can barely recognize our world. Oh, for the carefree days of Fall 2019, right?

As I have been  rereading my diary of those days, I keep thinking, “I am glad I did not know what lay ahead for all of us, and for me.”

Les fell and broke his hip on December 6, 2019. An ambulance took him to Porter Hospital to have it pinned. Since I always stayed with him, we were there until the day before Christmas. I missed the three Christmas trees we had at home, but we strung some lights in our hospital window. It was okay. And we loved getting home for Christmas Eve.

There was lots of physical therapy at home during January and February. Les was coming along well; we were encouraged. Then about the time that the COVID pandemic became obvious,  the middle of March, he began having pain and soon he couldn’t lift his leg to walk. I began transferring him to walker to wheelchair, to walker to commode, to walker to chair, etc., helping him lft and pivot each time. We went into hospice so I would have medications in the house to help him  in case his health went south during COVID, but we were afraid to allow any helpers into the house.

The pain increased; the morphine increased. Some confusion ensued. Toward the end of May,  we finally convinced hospice to send a mobile x-ray unit . Les’ hip was broken again. In fact, his femoral head had disintegrated entirely.

Now we were between a rock and a hard place. We could go on as we were, which was quickly becoming untenable. Although there were risks to surgery, there was also a finite chance to mitigate the pain and to walk again.

We chose surgery and spent sixteen days back in the hospital. (Fortunately, they had just lifted the COVID restrictions temporarily,  so I could stay with him.) We came home; the pain was gone; he could walk a little. But his 98-year-old body had gone as far as it could go. He became too weak to even stand. He just could not go any further.

Les died at 11:52 p.m. on June 25, 2020.

We had an online memorial service for him on July 25 . Our children from out of town could not come, of course. His ashes were interred at Ft. Logan National Cemetery three days later with only ten attendees, all masked and distanced.

Here are the links to his service and obituary:

Memorial service:       https://youtu.be/hAHluoUN7OU
Obituary: https://drive.google.com/file/d/1vzVdx7bnf6fzCQGM4OVvvTelEXhfJxWN/view?usp=sharing

Bulletin: https://files.constantcontact.com/1fe2f3ef001/692c301f-f670-4455-a187-7922953638de.pdf

I am heartbroken.

Transition to Cancer Survivor

This morning I read an excellent post on the transition from patient to survivor (http://quivervoice.wordpress.com/2014/08/07/picking-up-the-pieces). How do we go about our lives during/after a bout with cancer?

Nancy's post prompted me to review what I wrote in Fine Black Lines and I'd like to share that with you. Be sure to read Nancy first!

"Several years later, thinking that I had always handled my cancer well, I reread my diaries, absolutely shocked by how much my present perception of what I had experienced differed from what I had written at the time.

"And I realized how similar I was to the women who join our support group hoping to learn how to deal with their newly diagnosed cancer. How arrogant of me to think they should be where I am now. How essential it is that each woman ultimately find her own way. How important it is that I tell my story as it really happened, not as time has softened it in my memory.

"And yet, as some come with their terror, I see myself and others shrinking from recalling our early horror, trying to convince ourselves we were different from them.

"And when others come with a strong sense of denial and a most determined bravery, I feel great sadness–seeing the cloak of innocence they wrap so carefully around them, unaware how much it has already frayed."

(Excerpted from FIne Black Lines: Reflections on Facing Cancer, Fear and Loneliness, Copyright 2003, Lois Tschetter Hjelmstad. See http://ow.ly/gumLP)

 

 

 

A Final Poem for October

Affirmation

The breasts are gone
but I am
whole

Disfigurement
need not include
my soul

(Excerpted from Fine Black Lines, copyright 1993, 2003 Lois Tschetter Hjelmstad)

 

 

Questions No One Should Answer

Telling Knots has a great post on the thoughtless questions people ask of breast cancer patients and how people try to find reasons for illness and/or death.

Somehow we think that if we can assign blame and identify what the patient did to get cancer, we will know what dumb things not to do and therefore we will be safe from a breast cancer diagnosis and subsequent recurrence. This also extrapolates to any other randomness of biology and whatever accidents one can imagine. 

Her blog is very apropos for October's National Breast Cancer Awareness Month, because over 40,000 breast cancer patients still do die every year. No way is it their fault. 

And most breast cancer survivors do hear many of the things Telling Knots has heard. You will be very interested to read her post. She nails it. 

What I liked best was her conclusion that the tactless questions others direct at us actually say more about them than they do about us. And instead of answering, perhaps we should say, "Why do you ask?"

This makes me think of the afternoon that my Uncle Bill called, soon after my second mastectomy. After some small talk he got right down to the nitty-gritty and asked: 

"So they cut off both your tits? What will Les do now?"

I did not write a poem about the incident. If I had, should it have said

Good grief
Beyond belief
Should I debrief?

What are some better ways to relate to your friend who has been diagnosed with breast cancer?

 

 

 

 

 

 

Poem for My Flat Chest

In keeping with my recent posts on whether or not to reconstruct/replace one's breasts after a mastectomy, I offer one of my poems:

Double Amputee

I have looked this way
before–
flat-chested, pencil-thin

when I was ten

Strange it is to seem
a sexless child
again

(Too bad about
the graying hair
and slightly sagging chin)

(Excerpted from Fine Black LIines (c) 1993, 2003 Lois Tschetter Hjelmstad)