Posts Tagged ‘friends’

Death of a Friend

Almost two weeks ago, I had a distinct nudging to visit a friend of ours. 

Les and I have belonged to a small support group through our church since 1969. Of the original nine couples and one single, seven of the men and three women had died. Floyd, the one remaining man beside Les, had been having a rough spring and we had wanted to visit him and his lovely Lynette in Loveland, Colorado.

Since Les' November brush with mortality, his subsequent pacemaker, and various ups and downs, our doctor had asked us to stay close to medical care in the Denver metropolitan area. Then in early April, with things somewhat stable, he gave us permission to drive to Loveland. We kept trying to make the trip. Denver had four snowstorms in April; Les had bad days. Things just weren’t working out.

Thursday, April 25, I woke with this strong urge. The weather was good; Les was okay. So we went. Floyd and Lynette seemed grateful that we had come. Floyd had entered hospice care the evening before, but he was up walking around, sitting in a chair, talkative, peaceful. The four of us and son Galen shared deeply. Les and I felt the visit was meant to be. Whether or not Floyd and Lynn needed us, we needed them.

On April 30 Floyd died. I want to share with you, my dear readers, the poem I read at his service:

 For Floyd

We can’t believe you’re gone –
hospice, yes, but only six days?
You were just here – alert, alive, aligned
ready to go, most surely, but still participating

You were such a good man –

Working hard and faithfully over the years   
an expert with your hands
building beautiful things
gracing this space with mailboxes,
coffee mug shelves, the reusable casket

Loyal to your church, your friends, your family
generous, giving, always game for another adventure
another trip, another house, another state

You were such a good man –

steadfast in faith
confident in convictions, vocal in opinions
You weren’t always right, but you were resolute

You battled through cancer and heart attacks
and surgeries with more grace and courage
than most of us could manage

You were such a good man –

We honor you in your unwavering love for Lynette –
with gratitude for how you cared for her, protected her,
and lent her your staunch warmth and unshakable strength

Happy trails, dear friend, our love and tears go with you –   
pile into the motor home of immortality
bluegrass blasting, the fishing streams of Paradise forever filled

May you discover heaven to be lovelier than the hills of Arkansas
and may you find the most amazing adventures ad infinitum

amen

Lois Tschetter Hjelmstad
May 4, 2013

 

 

 

Unwanted Anniversary Part 3

My journey with chronic fatigue syndrome continued and continues. I wrote of it again in This Path We Share: Reflecting on 60 Years of Marriage. This small excerpt shows some of the ways we coped:

"We eventually learned that while some patients recovered from chronic fatigue syndrome, many did not. However, I was determined not to lose my real life to a disease that, even though a mystery to medical science, was not usually fatal.

"From 1989 onward, Les and I struggled to make that happen. CFS shifted our roles. Doing heavy work made me worse, so Les took over as many chores as he could. We learned to stay at home in the evening. We started going to bed earlier than we preferred. If I could order from a catalogue, I skipped shopping. Friends slowly disappeared because I did not have enough energy to make and keep luncheon dates or carry on a converation when I did go. My family and friends tired of asking how I felt and hearing 'exhausted,' so I started saying, 'Fine.' 

"I increasingly turned to Les for strength and understanding. Only he could validate my journey with CFS; no one else knew or understood how difficult it was for both of us.

"Sometimes I dreamed about CFS. I would be visiting relatives or attending a party and feel too exhausted to lift my arms or legs; I felt as if I were disappearing into nothingness. The dream always frightened me to consciousness, but it was the one nightmare from which I could not awake.

"The rivers of entropy flowed on. And we knew that we could not stay in the Garden of Eden, no matter how hard we tried."

Most of the time, I accept my limitations. After all, I have had twenty-four years to adjust. It is part of the fabric of my life. CFS and my breast cancer a year later changed everything. And nothing. 

During all those years since April 6, 1989, I had two separate mastectomies, gave up teaching piano, wrote three books, traveled by car over 400,000 miles (without homicide or divorce?!) to speak more than 600 times, spent precious never-to-be-forgotten hours with my beloved husband and our four children and their families. 

But I know that there are many CFS patients who cannot live their lives, no matter how much accommodation they may try to do. I have been extremely lucky and I feel unworthy of the good fortune I have had. I am trying to give back as much as I can out of gratitude.   

This thread to be completed tomorrow with a poem…

Married in September (3)

(continued)

Because my maid of honor had no more money than I did, I had borrowed a pale green bridesmaid's dress from another friend. (Les and I each had only one attendant, except for those two cute little candlelighters.)

And today is the 64th anniversary of the day that my mother, while pressing said dress, burned a hole the size of the iron right in front. The same day that a carful of unexpected company arrived from South Dakota. The same day I hemmed my wedding dress. All this two days before the wedding. Yikes.

And I commented in my diary:

The rehearsal went off well. It will probably be a beautiful wedding. I feel so detached and unconcerned. It is as if I were overseeing someone else's wedding – not mine.

I think I must have been in shock. 

More to come…

 

Just Stay Positive?

"You will be just fine" has long been a problem for me. No matter what horrendous circumstance one is facing, what one needs is support and validation, not cheer-leading. Discounting a person's feelings and implying that everything can be solved by being positive does a great disservice to the ill or injured or depressed or bereaved.

But at one time or another, I suspect we have all said it. I know I have. Do we say it to reassure others? To reassure ourselves? To deny what's going on?

And beyond that, there is "Just stay positive." Another soul shrinker that:

  • implies you caused your own cancer with your negativity
  • burdens you with being in charge of getting well
  • causes infinite pain if cancer eats at you until you die

I have a poem to share with you:

You Will Be Just Fine

Please do not trivialize
my suffering.

You who are healthy
You whose mortaility is as yet
Only dimly preceived–
Please do not say
"You will be just fine."

I may well be–someday–
But I do not know…
You do not know…

(Excerpted from Fine Black Lines: Reflections on Facing Cancer, Fear and Loneliness, (c) 1993, 2003 Lois Tschetter Hjelmstad. All rights reserved.)

And tell me why you think we keep saying, "You will be just fine."

 

Why Am I Alive? Why Is She Dead? No. 4

The White Horse
(for Ann)

Death comes on a white horse
to carry you away

I see the love in Her eyes as
she lifts you carefully
and cradles you in Her arms

You go willingly, eagerly,
even though you know

you can't come home again

(Excerpted from Fine Black Lines (c) 1993, 2003 Lois Tschetter Hjelmstad)

I miss you, Ann.